Listening to Dementia : Advocating for Dignity and Autonomy
Listening to Dementia : Advocating for Dignity and Autonomy
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Author(s): Abel, Emily K.
ISBN No.: 9781479846948
Pages: 176
Year: 202609
Format: Trade Cloth (Hard Cover)
Price: $ 147.22
Dispatch delay: Dispatched between 7 to 15 days
Status: Available (Forthcoming)

How dementia affects those living with the condition, their carers, and their advocacy In Listening to Dementia, Emily K. Abel demonstrates that recognizing the voices of people with dementia can fundamentally alter our understanding of both their lived experience and the discourse surrounding their care. She focuses on the memoirs of twelve individuals living with the condition who became advocates on their own behalf. The authors challenge reigning understandings of dementia while operating within familiar cultural notions. Abel addresses topics including the impact of stigma and discrimination on the lives of people with dementia, their portrayal in the vast advice literature for carers, the divergence between the views of carers and those of the people they care for, the reasons some people with dementia seek to end their lives before the disease reaches the final stage, and how dementia advocates react to carers' attempts to manage behaviors they consider troubling and inappropriate. Listening to Dementia breaks new ground both by analyzing the memoirs of people with dementia who became advocates and by discussing the administration of antipsychotic medications to manage behavior not only in nursing homes but also in the community, where the great majority of people with dementia live.


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